 |
| Meet Ari Wobiwo |
The name Ari Wobiwo was alien to me until I read about him from a friend's blog of which I had thought his story was a myth initially.
Life really is unfair to this teenage boy who didn't ask to be born nor could decide to chose how to be born which also applies to us all yet he was born this way and allowed to go through this torture for God knows how long!
He has been dubbed ‘Snake Boy’ for having an unusual condition that means he sheds his skin every two days.
Ari Wibowo, 16, must soak his body in water every hour and smear himself with lotion to prevent his skin – which he sheds every 41 hours – from hardening and leaving him unable to move.
 |
| Ari needs to moturize his body else he won't be able to move |
Indonesian doctors said they do not have the resources to treat Ari’s Erythroderma, or ‘red man syndrome’, which has given him his extraordinary appearance.
Photographer Nurcholis Anhari Lubis, 35, has been documenting the condition and says the boy is ‘scaly like a snake’.
Photographer Nurcholis Anhari Lubis, 35, has been documenting the condition and says the boy is ‘scaly like a snake’.
‘It’s really sad because he was not born normally and has scaly skin all over his body, similar to being severely burnt, from the sole of his feet up to his head,’ he told Daily Mail Australia.
If the boy doesn’t moisturise or soak his skin in water, his body would shrivel and harden up like a sculpture and he won’t be able to move.
In spite of his condition, Ari and his family are determined to make life as normal as possible – but the ignorance of others in the village has made it hard.
 |
| Determined Ari! |
According to Mr Lubis, Ari has had trouble making friends and schools won’t accept him because they fear his illness is contagious.
Ari’s mother has also been accused of torturing lizards while pregnant, as Indonesian superstition says mistreatment of an animal during pregnancy causes the child to resemble the animal.
*Sigh!
That's all I can do and has well hope for a solution and cure for this little boy and I'm sure you did the same and would pray and hope for cure for #Ari Wobiwo.
That's all I can do and has well hope for a solution and cure for this little boy and I'm sure you did the same and would pray and hope for cure for #Ari Wobiwo.
Culled from METRO
Photos: Rex
Comments
Post a Comment